Archive | May 2015

One year later! How LIFEtime flies…

Looking at the clock this morning was almost surreal. Exactly one year ago I was waiting to go into an awake craniotomy not knowing what was on the other side. I’ve always heard of things like this taking over people’s lives and now I understand how and why. None of us (that these medical issues happen to) expect to get “lost” from friends, time just seems to get away from us faster than most. 

At times this year it has felt like the days, hours even minutes were almost at a standstill. Our calendar was set around doctors appointments and they were always the boss. I’m sure for those that were helping me and enduring the worst with me it felt like time crawled. I wouldn’t be the best judge as words were even a feat at one point. During chemo and radiation treatment we kept a countdown of how many more sessions left, which had the opposite effect, time seemed to go by faster each day somehow. All mind games I suppose, something to look forward to. By then we just started waiting for the next doctors appointment to get results of the treatment. When we heard the words ‘we got it. Looks good’ and ‘REMISSION’ hit me it felt like a giant weight lifted and the clock stopped.

Now it all just seems like a blink of an eye. One year, really? Already? I feel like I need to double check it really happened but NO trust me I AM SURE (I have the barely there scar to show). I’ve been lucky enough to have made it through the surgery, my treatment and now get back to normal life. I still stand by my thoughts a year ago, glad it was me. I would not change the past or what I went through for anything. I take those lessons as memories and look forward to molding them into my future. I can’t wait to see what the next year brings. 
-V 😊

“Scars have the strange power to remind us that our past is real” – Cormac McCarthy

LIFE of a new patient!

Woohoo two month mark today!!! I’ve officially made it to the two month mark without driving myself insane with cabin fever, ignoring all the doctors rules, or snapped at any (Okok all) of their employees.

I had been going to the same doctors for so long that I had forgotten how difficult it was to be a patient. Much less a new patient! Patients need more help out there! Advocates! Real help! Someone to really be on their side and look out for them. Ask questions! Really get answers and research! Push until they get the right things done for them!

Lately I’m pretty sure I’ve broken a few rules of my recovery “stay calm” & “relax” because some of these doctors just drive me totally insane!! And their offices and employees aren’t very far behind. Maybe that’s why I ended up with so many 2nd, 3rd, 4th, etc opinions when this whole process started years and years ago.

At this point unfortunately it feels like I’m on the dueling dragon roller coaster just got off one color getting onto the next. Just when we make one life changing decision and get that out of the way now it seems there will be a whole new series of doctors and decisions.

It will be a bumpy ride but we will definitely take the same route as the first ride… keep looking for all opinions until we are happy and comfortable with what we’ve found. I was lucky to find a great medical team the first time around and am sure I will find a great one the next time around, especially since the first are sticking around.

At the end of the day… Two months… Wow! 🙂